TB Survival Project

I wonder how many of you know about the TB Survival Project? a former colleague of mine gave me this link.
n The Herald newspaper , where I worked for over 20 years, in Glasgow.

Sadly she died recently from TB.
TB Survival Project

Mary Davies- how the internet reunited the "lost children"

Mary, age 9 , Ward 2 balcony, 1951


Mary Davies ( nee Morris) with her grandson, Stephen, at the book launch of "The Children of Craig-y-nos".

Often it was the children and grandchildren of the original "children of Craig-y-nos" that made the initial contact with me like Stephen (above). This is his original email on behalf of his grandmother:


"I was in Craig-y-nos in 1951. The photo shows me holding a teddy bear taken in September it was a present from my family for my 9th birthday in August. I don’t remember much about my stay only that I was out on the balcony and when I was rainy and windy they had to put tarpaulin on top of the bed to stop it getting wet. While in Craig-Y-Nos I made 3 good friends one was called Mary Jones one Jeanette Wakeham but I cannot recall the name of the 3rd one, we had a photograph taken but I can’t find it but will keep looking for it, and post it up on here when I do. I also remember doing lessons much to my disgust!



When I had a bungalow built I named it Craig-y-nos after my experience of the real Craig-Y-Nos.

I have been married for 46 years have 3 children and 4 grandchildren. The thing that sticks out in my mind was my parents were only allowed to see me one weekend a month. They only came one day as it was to far to travel as we lived in Rhayader in Mid Wales."


Mary still lives in Rhayader and, at our first official reunion two years ago, she was the first to arrive having driven alone for over two hours through the mountains.

This video clip captures her emotions on that momentous day:
Mary Davies


"The Children of Craig-y-nos" by Ann Shaw and Carole Reeves, paperback price £9.99., available from Brecon museum, Amazon.co.uk or most good bookshops.

Brian Richards - Bournemouth

Brian Richards travelled all the way from his home in Bournemouth to attend the book launch of " The Children of Craig-y-nos".

Now a retired baker, he was in Craig-y-nos along with his two brothers.

"The Children of Craig-y-nos" by Ann Shaw and Carole Reeves, paperback price £9.99., available from Amazon.co.uk or direct from Carole Reeves, Wellcome Trust Centre for the History of Medicine, UCL, 183 Euston Rd., London, NW1 2BE. Phone 02076.798 135

Ellis Thomas and "The Children of Craig-y-nos"

Both Carole Reeves and myself have received letters from Ellis Thomas regarding the book: "Children of Craig-y-nos":

"Have just received my copy of the book. What a marvellous production! I was
taking a first flick through it when Ann rang, asking if I'd received it!
The book I find absorbing, to be read and re-read. I thank you and Ann most
sincerely for creating something which I never thought I'd see in my time -
and all through an enquiry on the correspondence page of the local paper!"

Thank you Ellis. It is always good to have feedback.

Margaret Madock- at the book launch

Margaret was a patient from 1951-53.

Gwanwyn Evans - 1931

Gwanwyn Evans with her brother


Gwanwyn Evans, first lady mayor of the county of Brecknock (1981/82) who was in Craig-y-nos in 1931 as a ten year old.

"I am reading "The Children of Craig-y-nos"" and I have got to page 91...it is most interesting...do you know that I think it was Nan Davies* who took my place singing in the concert. The dates are not quite correct but it is such a long time ago... I had the best voice in the ward and I was so looking forward to it. My mother had sent me in a special frock to wear and a nurse had put my hair in rags the night before so that I would have ringlets.

Then I woke up with a temperature and I had to stay in bed. I think it was the excitement. But I was so disappointed!"


Eighty-eight year old Gwanwyn, who lives in Aberyscir near Brecon, had hoped to come to the book launch and had paid her deposit but she couldnt find anyone to bring her.
"Afterwards Glynne Lowe rang me up. We have known each other for years and neither of us knew that the other had spent years of our childhood in Craig-y-nos."
If I had known I would have got a lift with Glynne."

I mention my cousin, Edna Walters, who farms near Brecon.
" Of course I know Edna! " says Gwanwyn.
"She came to the book launch too."
"If only I had known..."
"She would have been delighted to have given you a lift."

Her husband Glynne Evans, former vice-chair of Powys Area Health Hospital is also reading the book with particular interest for he was involved in the decision to move the children to Talgarth.


*Nan Davies
Her story is on page 16 of the book- how the ghost of Adelina Patti tapped her on the shoulder and told her she would go out and sing the best she had ever done.

"The Children of Craig-y-nos", by Ann Shaw and Carole Reeves, price £9.99, is available from Brecon museum. It can also be ordered from any bookshop or online from Amazon.co.uk
Or contact Dr Carole Reeves, The Wellcome Trust Centre for the History of Medicine, UCL, 183 Euston Rd., London, NW1 2BE. Phone: 02076 798 135.

Gareth Wyke at the book launch

Gareth Wyke as a child in Craig-y-nos...


...returning as an adult

Gareth Wyke travelled all the way from Stourbridge in the West Midlands to attend the book launch of "The Children of Craig-y-nos".

He says of his five years in Craig-y-nos from the age of 5 in 1953:

"I think my time in hospital definitely effected the person I was to
become.I relate to words and phrases such as ones you mentioned, like'lost
childhood','loner','self reliant','independant' and could also add
'anti-social[sometimes]','unloved',and 'persecution complex'.
When I arrived home I had a new sister I'd never seen before and she used
to cry and say I wasn't her brother.
However,despite having 'matchstick legs' and being teased by new classmates
I made a full recovery becoming a PE teacher and playing rugby until I was
fifty."

Copies of the book "The Children of Craig-y-nos" can be ordered from any good bookseller . The number to quote is: ISBN-13: 978-0-85484-126-4.

There are two wholesalers who will be able to supply the book. These are
www.bertrams.com and www.gardners.com

Alternatively contact Dr Carole Reeves, Outreach Historian , The Wellcome Trust Centre for the History of Medicine, UCL,183 Euston Rd., London, NW1 2BE, price £9.99 or online from www.amazon.co.uk

"Children of Craig-y-nos" Hay Book Festival

Emma Davies (left) and Emma Evans of the Welsh Book Council at the Hay Book Festival.

They are holding a copy of "The Children of Craig-y-nos" . The Welsh Book Council had very kindly agreed for me to display the book on their stand at very short notice and a number of copies were sold.

Children of Craigynos

We are staying in a cottage in Llanigon belonging to Pollly Rogers and she tells me that a friend of hers has a relative who was interviewed by me for the book"Children of Craig-y-nos". They want to buy a copy. A signed copy.

Archbishop of Canterbury at Hay Festival

Last night the Archbishop of Canterbury, Rowan Williams, and Desmond Tutu attended service in St Mary's church.

We arrive late. Very late. We are ushered through to the front pew marked "reserved" along with some other late-comers.

Afterwards a Catholic priest asks who we are. (Folk think we are celebrities from the Hay Festival.)
"Sorry, we are just late-comers!"
The priest is disappointed.

The Archbishop - who was a mere 5 yards from me - spoke about love and the power of healing. Afterwards I joined the queue to shake his hand.

You just never know what is going to happen at Hay next....

Dannie Abse

Dannie Abse, Wales' greatest living poet, gave a reading of poems from his new book before a rapt audience.

One woman dares to chatter to her companion while he searches for the next poem and he whips his specs off and glares in her direction. She goes bright red and never says another word.

Afterwards I join the queue to get my two books signed.


Except in the queue I am joined by Arnold Whesker and his entourage of friends behind me. My courage fails me. No way could I begin to explain about Craig-y-nos with Whesker standing behind me.
So I wave them through.

In fact when I look at the long queue I decide to wait until the last.


Finally I am face to face with Dannie Abse.
He is charming.
He expresses surprise at the book "Children of Craig-of-nos" ( " I don't know anything about this") so I explain that it has only just been published and I show him his quote which Carole Reeves had picked to introduce the book.

He's delighted. He accepts a copy and he seems genuinely pleased to receive it.

Then he signs the two books: one for Carole and one for myself.


For Dannie Abse was a doctor, a chest specialist, before he became a poet.

Internet access

First of all a moan about internet access at Hay. It is atrocious! dont know what they have done to it but in previous years there was no difficulty updating blogs on Festival site.

Now its a hit and miss operation. Mainly miss...
So its up to the Hay Tourist Office, join queue for computer then the agonising slow wait as the computer boots up and you try to connect...all the time the minutes and money is ticking away.

Oh yes and the Tourist office closes at 5pm so no chance of using it in the evening.

Come on Hay Festival- you can do better than this! and to compound the problem I cant use Twitter either because my Iphone is on O2 and this is an orange mobile phone area.

Dannie Abse

Dannie Abse will be talking later today. Have just bought his book and will give him

a copy of "The Children of Craig-y-nos". We have a quote by him in the book:

"TB I've got
You know what TB signifies?
Totally buggered. He laughed.

His sister cried."

Mari Friend

Mari Friend ( nee Jenkins) with her husband, Peter, and Ann Shaw (nee Rumsey)at the book launch"Children of Craig-y-nos" in Craig-y-nos Castle.

Says Ann:"We were children in Craig-y-nos together. It is great to meet up with so many friends again."

Hay Book Festival

Delivered books -"The Children of Craig-y-nos"-to Welsh book stand at Hay Festival.
They have sold three today and I have more back in my rented cottage - thanks to Carole Reeves sending them in advance from London though they are intended for the Brecon museum later in the week.

Scorching hot weather in Hay. Town sold out of sunscream and the public loos next to the Tourist Information Office only flush intermittently.

The London literrati who have decamped here for the week are not amused.

Cynthia Mullan, director of the Sleeping Giant Foundation and Len Ley, local historian at the launch of the book "The Children of Craig-y-nos" in the restored Glass Conservatory of Craig-y-nos Castle

Some people are having difficulty ordering 

 'The Children of Craig-y-nos' through local bookshops.

Dr Carole Reeves has asked me to point out that:

 "'The Children of Craig-y-nos' is available through bookshops and on Amazon

(www.amazon.co.uk) if you prefer to order online. 

If your local bookshop tells you that they don't know how to order it (as happened to someone

recently) tell them to contact their wholesaler quoting the book's ISBN

number. This is ISBN-13: 978-0-85484-126-4. This number is unique to the

book and will identify it immediately.

There are two wholesalers who will be able to supply the book. These are

www.bertrams.com and www.gardners.com  

Most bookshops will deal with these

wholesalers."

(photo: Karen Howard)

Children of Craig-y-nos - a healing project

(book launch) - photo Karen Howard

Many people are telling me how they found being involved with the Children of Craig-y-nos project a healing process.

For the first time, and I include myself, we were able to talk about those experiences in childhood which had been buried deep in our minds, dark secrets from the past which we dared not talk about.  Now it has all been brought out into the open and we realise that it is no longer a taboo subject,  and we feel healed by the process of being able to talk and share these experiences with others who went through it .

"Children of Craig-y-nos"by Ann Shaw and Carole Reeves, published by The Wellcome Trust Centre for the History of Medicine at UCL, price £9.99p

available online through Amazon.co.uk,  as a free PDF file http://www.ucl.ac.uk/histmed/library/craig_book

Val's newsagent in Ystradgynlais - I have just heard that they sold out of the books as they were being unpacked and they have placed another order!

Any bookshop will order the book for you. If there is any difficulty the ISBN number is : 

ISBN -10: 0-85484-126-1 

ISBN-13:978-0-85484-126-4

Alternatively, ring Carole Reeves: 02076.798 135 or write to her:

Dr Carole Reeves,

The Wellcome Trust Centre for the History of Medicine,

183 Euston Rd.,

London,

NW1 2BE

PS

One reason we sold out so quickly at the book launch was that people were buying them up as Christmas presents!  in the end we had to say that ex-patients had priority.

More launch photos-at Craig-y-nos Castle

Malcolm Shaw ( Ann's husband ) who was responsible for digitising and "cleaning" all the photographs with Gwen Jones, a  family friend from Llanbedr.

Pam Hamer ( nee Osmond) who was a child in plaster duringthe late 1940s out on the balcony and woke one night to find a rat running up inside her bed. " I felt its long tail against my face I screamed and the night nurse appeared.  She told me it was Joey the pet rat from the kitchen who had come to see me."

"The Children of Craig-y-nos" is available  online from Amazon.co.uk or Dr Carole Reeves:  02076 798 135. Alternatively any bookshop will order it for you.

Ann and Carol signing books at the launch of "The Children of Craig-y-nos".

(photo: Karen Howard)

Christine and Beryl at book launch

Christine Perry ( nee Bennett) and Beryl Rowlands ( nee Richards)  at the book launch of "The Children of Craig-y-nos".

(Photo: Karen Howard)