BBC Radio 4:" Saturday Morning Live"

 Tom Daley, diver, celebrity guest 
Ann Shaw, ex -patient ( 1950-54) was invited on to BBC Radio 4 :"Saturday Morning Live" last Saturday (October 16 ) to talk about her years in the sanatorium and how she came to re-connect with that past experience  through this blog which eventually , with the help of medical historian Dr Carole Reeves,  became the book"The Children of Craig-y-nos".

The celebrity guests on the programme were Tom Daley, diver, and pop singer Anne-Marie.

Ann comes on at the end of the programme . She says:" I am pleased that at long last we are able to talk about that dark time in Welsh history  of being isolated for years from the community in a remote castle deep in the Welsh valleys. Many of us were traumatised by that experience and only now is this being recognized."

Television : "Children of Craig-y-nos"

Fresh air treatment out on the balcony Ann Shaw ( left) with friends

If you missed the recent documentary made by Wales ITV about the "Children of Craig-y-nos" this is the link.

https://www.itv.com/walesprogrammes/articles/children-of-craig-y-nos

The consensus of opinion is that this half hour documntary made by Welsh television mnaged to encapsulate some of the our lives. It certainly gives a flavour of what we lived through.

So thank you Wales ITV for bringing this subject to a much wider audience.

Daily life

Does anyone recognise a relative amongst these little girls?

The swans were a popular feature on the lake.

Brian Griffiths' mothers collection

This is a very old photo of Craigynos Castle long before it became a childrens TB sanatorium at the time it belonged to Adelina Patti.

Here are more photos from Brian Griffiths in Swansea's collection which he found in his attic. They belonged to his mother, Phyllis, who worked as a sister at Craig-y-nos.

She died when he was 11 years of age. Brian is now 65.

He says finding the photos and going through them has proved to be a very emotional experience. He would love to be able to fill in the missing  history of his mothers time working there and if anyone has any information which they would like to pass on to Brian then please email me- annshaw@mac.com- or text 07543 671260- and I will pass it on to Brian.

He now lives in Swansea.

Some members of staff playing tennis.

Found in the attic

 

 

Sister Griffiths (centre) with two members of staff

 

I never dreamt when I set out to write a book over a decade ago ago about a children’s TB sanatorium in the Welsh valleys (I spent four years as a child there) that I would still be getting people contacting me in search of their own missing family history.

 

But it still happens on a fairly regular basis. For the book “The Children of Craig-y-nos” is the only record in the world of life inside such an establishment. Thus it is a unique piece of Welsh social history.

 

This morning twenty  photos dropped into my email box from Brian Griffiths, Swansea of his mother, a ward sister on the balcony with a young patient.

 

“ I was sorting out the attic and I came across this big box of photos,” said. Brian. “ I knew my mother worked in this hospital but I have very little knowledge of what her life was like.”

 

Tomorrow I will post the photos and the rest of the story. Meanwhile here is an original photo of the hospital which has not been changed i.e photoshopped.

 

Craig-y-nos film: "Hear Me Now"

This is link to  " Hear Me Now", the excellent film made by Final Year students at Stirling University.

It tells the stories of Pamela Hamer, Roy Harry, Roger Benyon and Ann Shaw.

Maria Craig, film director, with Ann Shaw

Roger Benyon-early 1950's (inset with Ann Shaw in 2017)

Former patients with their partners in the Adelina Patti theatre on the day of filming.
They are (from left to right): Mr Hamer, Roy Harry, Roger Benyon, Malcolm Shaw, Ann Shaw, Pamela Hamer, Sylvia Moore and Valerie Harry

Launch of film "Hear Me Now" in the Macrobert Arts centre, Stirling University

Boys on the balcony- Craig-y-nos castle

Craig-y-nos Castle - ( 1940s )  boys  on the balcony.


This iconic photo of boys on the balcony at Craig-y-nos in the 1940s has suddenly got a new lease of life- again!

Students from Stirling University Film and Media Department  are using it in their crowdsourcing campaign to raise money to make a documentary about a children’s TB sanatorium.

• So far they have raised £780  of their £1,000 target

The students will be travelling down to  Craig-y-nos in the Swansea Vallaey  to film  in just over a week’s time, and I have suggested they wrap up warm because it will be cold.

A small group of patients have agreed to be interviewed.  And, of course, there is the small matter of the ghosts…particularly Adelina Patti.

Oh yes, I will be there too.

Girl Guides at Craig-y-nos

I have had a request from Guiding Cymru asking if they could these photos of Girl Guides in Craig-y-nos  in their forthcoming exhibition in the National Library, Aberystwth to celebrate the centenary of the Girl Guide movement.

Looking back on these photos I am struck by the sheer lack of Health  and Safety at the time: imgine children building a fire and cooking on it in a hospital ward!

My own memories of the time  the Girl Guides  spent with us are positive. They were our only link with the outside world and I can still do the knots they taught us!

"The Children of Craig-y-nos" by Ann Shaw and Carole Reeves is available in paperback for £9.99p from Amazon

On the balcony of Craig-y-nos castle

Ann (left) with Margaret and Joan

I wonder if you saw the shocking documentary last night TB: Return of the Plague? ( BBC4 )

Probably not unless you had a particular interest in medicine or Africa.

But it brought back memories of my own childhood in Wales where I spent four years in Craig-y-nos Castle, a children’s sanatorium in the Swansea Valley. ( I later wrote a book about it co-authored with medical historian Dr Carole Reeves “The Children of Craig-y-nos”).

I lived out on an open balcony (left in photo) summer and winter and it was not unusual to wake up in the morning to find our beds covered in snow. We were provided with sheets of green tarpaulins to protect us.

So much of the African story from Swaziland,  apart from the weather, resonated with my own experience – the dreadful food, the physical isolation from home, family and friends, the boredom, the daily tough treatment of injections medicine and drugs which went on for months, even years.

And the tragedy of those who did not respond to treatment and were sent home to die.

But what for me is a distant memory still goes on for thousands in Africa everyday only worse because of the strain of superbugs resistant to drugs.

Graham Canning - 1948-1953

Graham Canning, age 67, tells his story of the years he spent as a child in Craig-y-nos:

"I recently saw the BBC  "One Show" about Craig-y-Nos . I too am a past patient spending nearly five years there.

(3rd June 1948 to about 8th March 1953.

I contracted TB in the left knee, which then spread, to my right hip. “ 

Photos show Graham not only in a plaster cast but with his hands tied to the bed too because he had worked out how to undo some of the shoulder straps tying him down.

However, after sorting out my left knee my Mother brought clothes to bring me home and was told that I had collapsed when walking and investigations discovered that the TB had spread to my right hip.  After 2 years of my parents were devastated.  The right hip was now a different matter to the left knee however.  By the time it was detected the TB had all but destroyed the hip and the doctors had to fuse/lock it.  This meant that I have very limited movement of the hip.

Also I was also left with a shorter right leg.

Many of the comments on the One Show I recognized.  My parents also could only visit once a month.  There were quite a few visitors from the Cardiff area and I recall my Father telling me that the Cardiff bus used to miss the Swansea connection to Craig-y-Nos by 5 minutes.  So my Father spoke to the Swansea bus company and they agreed to change their timetable to meet the connection.

It is perhaps worth recording the tremendous power that the doctors held then.  My parents were told that when I eventually came home I would need a lot of care and attention.  In fact so much that they should not have any more children so that they could devote all their time on me!  So I became an only child.  I don't know the name of the doctor, my Father thought her to be foreign. (This would be Dr Hubbard the Austrian-Jewish refugee).

I was tied with straps to the side of the bed but because I used to strain to reach and then undo the knots they moved the straps to the rear of the bed over my shoulders and through the springs of the bed well out of my reach - and that was that! I remember the straps coming from a corset type jacket around my body.

I remember during the early stages of learning to walk clambering to the end of my bed in anticipation when I smelled the polish on the leather of the boots forming part of the calipers and hoping they were coming to me.  

My Parents

My Mother never really got over my illness and the length of time I was away.  Her everlasting memory of when I first went to Craig-y-Nos was of me being carried away in a nurse's arms with me looking back over her shoulders crying with arms outstretched reaching for her.  All her life she informed others that I was in hospital for 5 years.  It left a mental scar, which remained with her all her life.  

Me

With regard to contracting TB I have always considered myself lucky.  TB at that time was a killer and many died because of it.  Those that died in the main had the disease in their breathing system, in particular their lungs.  Even if they survived it was likely that breathing problems could occur later in life.  My problem was physical and was simply a case of adapting and getting on with it with little risk of problems in later life. To date that has been the case.  I've led a very active life, playing sport at a high level, in particular badminton and can do all the things, like swimming, riding a bike etc. that doctors thought not possible.  Although I was playing badminton at a high level my hip frustrated me and I sought advice from a top consultant to ask if there was any way I could change my situation eg. lengthen my right leg and replace my hip with a new one.

But he said there were no realistic options and it was a miracle that I could play sport at the level I was playing without any discomfort that I should send the surgeon who did the operation on me as a teenager a magnum of champagne.

. 

When I first came out of hospital my parents/family suggested I should have a wheel chair but I was having none of that. They say we are all products of our environment and upbringing and that was certainly the case for me.

 All my friends were keen on sport, one a good footballer, another a good runner, another a good wrestler, etc. and children being what they are you either compete with them or you are left behind.  It was great character building and with my positive outlook on life and total disregard to my disability (eg. on school sports days I was always on the starting line for races knowing I was going to finish last!) has stood me in good stead all my life.

At 14 years of age I had a further operation in a Cardiff hospital to take a bone from my shin which was placed in my hip thus increasing the length of my leg.  But for that operation my right leg would now be two and a half inches shorter instead of the one and half it became and still is. So what has been the effect on the family?  Nevertheless I played all sports, as I grew older, playing badminton at a high league level, coaching and managing the Welsh U14, U16 & U18 Welsh national junior squads.

Finally, my coming home was a strange event.  My parents rang up one day and asked if they could look after me at home.

The Sister said she would speak to the doctor and for Mum to ring back later.  So Mum did and the hospital agreed and told Mum to come and get me, just like that!!!

Graham remembers the huge party at his house to welcome him home and people coming in and throwing money on to the bed for good luck. “The whole street was there. In those days there was a strong community spirit.”

Coming home had its problems. He wasn’t used to doors and he used to run in and out of peoples houses.” If my mother smacked me for being naughty I would say:” I am going to tell sister in you.”

The family lived in Grangemouth, Cardiff where his father worked on the docks as a tugboat skipper

He says his father used to buy cheap unpasteurized milk from the docks.

 (Graham is unaware until I tell him that unpasteurized milk is the main source of TB of the bone).

As a ten-month-old baby he had Pinks disease (caused by mercury poisoning) and he is lucky to have survived it only to go down with TB of the bone 18months later.

At 9 years of age he was hospitalized again after falling off his bike where the handlebars ruptured his stomach and led to the removal of his spleen.

But despite all these early setbacks Graham was determined to make something of his life.

“ I was lucky. I was born with the right attitude to life,” and so it has proved.

Today  67 year old Graham is a retired Civil Servant and he continues to lead a very active life: he plays badminton twice a week and goes dancing (rock ‘n roll and jiving) with his wife every week in Cardiff. They have two daughters.

"The Children of Craig-y-nos" by Ann Shaw and Carole Reeves, published by the Wellcome Trust for the History of Medicine, price £9.99 is available from Amazon online.